Wednesday, 23 April 2014

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Hi everyone!

Hope you all had a good Easter. I got lots of yummy eggs ;-)

I've been using my bike a lot in the past week! The first time I went on my bike, I did 1 kilometer, and I am now up to doing 2.5 kilometers! It's hard work, but every time I try to push myself a bit more. I have been going faster and further each time. I feel I am getting a lot fitter, and I really enjoy using my bike.

I haven't had such a good week in terms of eating, however, as I've been sick a lot! This won't be helping my potassium levels, which have been really low for a couple of weeks (2.6). A lot of the time when I eat, I feel nauseous and full, and my stomach hurts. When I cough after eating, I'm sometimes sick. I really hate feeling like this! 

Some more exciting news, though...I have started spending some time completely off my cylinder oxygen, for the first time in 8 months. The day before yesterday was the first time, when I spent 20 mins off, and today I spent 1 hour and 10 minutes off. I will keep pushing this, like when I was weening off the ventilator in intensive care, and hopefully I can get off the oxygen therapy completely. My lung function is generally stable, but my peak flow has improved. If I can start putting some weight on, hopefully my lung function will come up some more.

Yesterday, I went to my main CF centre, which is always really tiring at the moment, because it takes nearly 2 hours to get there, and then we spend 2 to 3 hours there before travelling back. I was really sick all night when I got back. I also came away with a CGM (continuous glucose monitor) fitted again, which is really uncomfortable. I'm feeling better today, though...trying to get plenty of potassium in, from supplements and coconut water (yuk). Dad's got me drinking peppermint tea at the moment too, to try to help my stomach...what a weird diet I have these days.

On Thursday, I went for a meal with my friends, Phoebe, Mollie, Beth, Laura, Kya and Millie at Pizza Express. I had a lovely time. It was the first time I'd seen most of my friends in about 10 months! It was really nice catching up with everyone. Here are some pictures of my outfit and from the night:

Next month, I'm going to Birmingham, to see McBusted play at the LG Arena with Phoebe! We're going to stop in a Premier Inn. I'm really excited! In June, I'm seeing One Direction and Little Mix! I'm addicted to concerts ;-)!

Thank you for reading!

Harriet xxx





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