Monday, 31 March 2014

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Hospital Tests


Since my last update I've been very busy!

Last week I stayed in my local hospital for 2 nights to have some tests done, as I am going up to Great Ormand Street Hospital for a lung transplant assessment. This doesn't mean that I'm having a lung transplant for sure, but it's good to get GOSH's opinion. We're hoping that I won't need a transplant though. The tests I had done were; a CT scan (I didn't like this as they had to put a contrast dye in through my cannula and it really stung, and gave me a burning feeling all over my body!), chest x-ray, overnight capnography (to test for carbon dioxide, relating to oxygen levels), lung function (my lung function is up to 28 percent, which is 4 percent more than last time) and blood tests. We also had a meeting which a lot of different people attended, to put together my care package and set up things that I need at home to make me more comfortable. I think overall it was very positive! I did a walk test with my physio too, where I had to walk as far as I could in 6 minutes. I walked 155 metres in 5 minutes, with a 1 minute break in the middle. I was quite pleased with myself and the physio was surprised at how well I did! When I was on the ward, my friend Molly was also staying on the ward, so it was nice to see her and catch up with her!

A couple of weeks ago we also went to Exeter for clinic, and to meet with the diabetic consultant. I have started a new type of long-acting insulin called Insulatard, which I have in the morning, ,and if my blood sugar goes above 10, I have to take an injection of Novorapid insulin, too. 

As it was Mother's Day yesterday, my Mum, Dad, sister and I went for a walk on Marine Drive. It was really sunny! I took lots of photos with the camara that I got for Christmas, and had a really nice time! Afterwards we went for an ice cream in the village. When we got back home I had a sleep and then we watched a bit of the Woman in Black =O! Happy Mother's Day to my lovely Mummy for yesterday, I love her so much and she is always there for me! She is the best Mum in the world.

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Thank you for reading my blog!

Harriet x x x


  1. You are an amazing wonderful beautiful daughter. I love you with all my heart. You continue to amaze me at your strength and determination to not let CF get you down. You never ever complain. Love you so much darling, I am so blessed to have you as my daughter XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

    1. Love you Mummy xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

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